I am 1 in 10. I am 1 out of the 10 people who suffer from Endometriosis. The story of my struggle with Endometriosis is like so many others stories. I suffered for years without knowing what was going on inside of my own body. I searched for answers, through doctor after doctor, to explain the many ongoing symptoms. I had painful, heavy and abnormal menstrual cycles, lower back pain, pelvic pain, GI issues, and painful intercourse to name a few. I underwent a hysterectomy at the age of thirty-seven, followed by two additional surgeries. Going into the hysterectomy, I thought that it was finally going to be the end of my pain and suffering. It never once crossed my mind that surgery was just the beginning of my journey. Like so many others, I wasn’t under the correct care. It wasn’t until after the hysterectomy that I was diagnosed with Endometriosis, a condition where tissue similar, yet different, to the lining of the uterus is found elsewhere in the body causing a wide range of symptoms.
When I was diagnosed, I did not know another person who had Endometriosis. In fact, there wasn’t much I did know about Endometriosis before spending hours upon hours researching it. It became clear to me during that time that I must advocate and shine light on this invisible yet debilitating condition. However, I was unsure on how to do just that. It wasn’t until I was in bed recovering from my last surgery, excision surgery, that I lay thinking about my journey thus far. I kept thinking about how 1 in 10 people have Endometriosis, yet I didn’t know a single one that had been diagnosed. Why aren’t we talking about this? Why are we silently suffering rather than speaking up and supporting each other? At that moment, a spark ignited in me; a cause, a passion, a calling. That’s when I knew it was time to break the silence around Endometriosis.
Through the awareness created via Endo Threads, my hope and dream is that connections will be made, conversations will begin, healing will be found, and voices will finally feel free to speak, to be heard, but most importantly that voices will be united. No person should have to suffer in silence, or alone, anymore. Having two little girls myself, change around this disease is not optional to me, it is my mission. Change in detection, change in proper treatment protocols, change in possible prevention and eventually the discovery of a cure. Whether you have Endometriosis or support someone with Endometriosis, you know that it affects not only the daily life of the person who has it, but it affects the lives of their loved ones as well. Let’s get the conversation started. Let’s start a movement and create the path forward for change.